So we pulled into the parking spot at 6:30 am and with impeccable timing, Danny pulls into the spot right next to us.
So we get to the front desk, get our badges, and set out on our hunt for the MRI check in. They've done some construction in the hospital (which they warned me about) but I cannot for the life of me figure out why they erected a random wall blocking a hallway. So we had to go the long way around and then found out they moved the MRI check-in station. It's now in the MRI waiting room which does make more sense than its previous location. He was officially checked before 7! (when we were scheduled to arrive; I think it might be a record)
He gets called back and we talk to the nurse, radiologist, and anesthesiologist. They had the wrong papers at first. They were asking me when he had his last round of chemo and talked about putting in a port. Nope. Definitely not my kid. All of the papers were signed, we put all of his (and our) things in a locker and went back to the prep room. HE DID AMAZING. He didn't fight the mask or anything! He used to put up such a fight. I'm beyond proud of him.
He was wheeled off and I was given a beeper for when he was finished. I went over to the cafeteria (fasting is no fun, but it's only fair if your kid can't eat either). I ran into a nice family that I met in the MRI waiting room. Their child was also 7, autistic, and had brain surgery at Children's 2 1/2 years ago. Turns out the poor kid was a walking seizure, I can't even imagine. He had 1/4 of his brain removed, and even removed it was seizing. Crazy.
I got a phone call saying that he was in recovery, the beeper never beeped. Turns out they don't work in the cafeteria. Oh well. We go back to recovery and there he is fast asleep. The nurse comes in and tells us how it went. He was squirming and wiggling even after being sedated so they had to give him more. Doing so dropped the poor kids blood pressure to an average of 67/25. There were points when it was 58/something and something/20. Sigh. He slept it off for an hour and a half while attached to fluids. Usually he's in and out of recovery in half an hour to 45 minutes. We finally wake him up on our own, I think the recovery staff was getting a bit antsy and needed a room. We left with Logan in arm (quite literally, my arms) to go up and see Dr. Magge.
I carried that not-so-little boy through the now maze of the second floor, and up to the neurosurgery office. I get him all signed in and as soon as I do the little bugger is right back in my arms refusing to sit down, let me sit down, or to go to daddy. It wouldn't have been a problem if he helped hold his weight but he was still lagging from the anesthesia. So I held him for what felt like forever.
Finally get called back and wait in the room for awhile. Doctor Magge said the images look amazing! He can't explain why Logan was having headaches but if it starts again to call him immediately. He also said to put lotion on the incision because it may have been itchy and that could explain why he scratched at it. He then asked how Logan was doing with Doctor Dankner (eye doctor) and you know what, we haven't seen him in forever either. The first thing I did when I got home was schedule appointments.
Naughty little scab picker.
Sleeping it off.
See that tiny little speck that used to be a massive syrinx?!
The little dudes had dentist appointments today. They were amazingly well behaved. Both had x-rays done, both sat down and got their teeth cleaned. And most importantly of all, they're both members of the NO CAVITIES CLUB! Hooray for "excellent dental hygiene." I was concerned about Talon, he's a little sweets monster.
We see the eye doctor in two weeks and then both the dentist and Magge in October. Let's see if I remember to update after his eye appointment. Someone out there reading this should hold me accountable.
