A bit of background

My husband and I had our first son November 6, 2007. His name is Logan Craig. I have epilepsy and during pregnancy I was on an anti-convulsant medication. That medicine has since been declared unsafe for pregnant women. I continued to have grand & petit mal seizures even while on it. When he was born I asked the cliche question about having 10 fingers and 10 toes. He does in fact have 10 of each, but two toes are fused. That was just the beginning.

I'm going to do an overview to chronicle what has happened since. I put it in bullet points so it is easier to follow. More details will be included in actual posts.

• Logan was typical until about 15 months old. At 15 months we became aware of his delays and regression.
• He no longer used any words. He did not even free stand until about 18 months old. He did not walk until he was 22 months old. 
• At 18 months we began working with Northwest Infants & Toddlers early intervention. He was found to have global delays of at least 20% or more, which qualified him for their services. They provided him with play therapy, physical therapy, speech therapy, occupational therapy, group therapy, etc. All free of charge. We will be forever grateful. 
• He graduated out of the intervention program and began a special needs pre-k. By the time he is finished with this class, he will have spent 2 1/2 years there because his birthday is past the cut off date. His teachers are amazing ♥
• Logan started speaking again around his fourth birthday (November 2011). While it was still very little it was a HUGE victory.
• Around December of 2011, right after his birthday, we noticed his eyes starting to cross. It became more and more frequent. We went to see a specialist in the field. He said it was strabismus and suggested muscle surgery to correct it. First, however, he wanted us to get an MRI scan done to rule out a mass or pressure on the optic nerve.
• Logan was sedated for the first time and had an MRI. (April 2012) The procedure was supposed to take 45 minutes, we waited for 2 1/2 hours. When the dr came into the recovery room he said "his brain is fine, but..." That's when we learned Logan had Syringomyelia, or a Syrinx. After seeing many specialists we learned that he also has a Chiari One malformation. 
• We're currently in the limbo that involves seeing a bunch of neurosurgeons and discussing surgical options. There is no cure for this condition. 

Now, I know that sounds like a whole mess of negativity, but that's because I haven't told you how well he compensates for his weaknesses. He is the absolute sweetest, gentlest, most mild mannered, polite child you'll ever meet. He's also able to read and write in cursive. He knows how to read/write/interpret basic spanish vocabulary. He can draw three dimensional images and recall images to imitate. He can write out the keyboard from memory. Logan is stellar in so many ways.

We welcomed our second son, Talon, September 30, 2011. Logan's not a fan! I'm sure they'll learn to love each other someday. So far Talon is a healthy, crazy active, bottomless pit...so a typical little boy. Well, he is short and scrawny. That goes for Logan too. They can blame genetics for that one though ;)




List of Logans doctors and their fields so it is easier to follow along throughout the posts.

• Dr. Gelletly- Pediatrician
• Dr. Zuckerberg- Anesthesiologist 
• Dr. Dankner- Opthamologist
• Dr. Baranano- Neurologist
• Dr. Magge- Neurosurgeon