We took him to see the pediatric opthamologist (who is absolutely fantastic!) We had multiple meetings with Dr. Dankner in order to get a full understanding of his problem (technical term: strabismus) and tons of measurements in case we went ahead with eye muscle surgery. First things first he suggested we get a brain MRI to rule out any sort of mass or pressure on the optic nerve.
On April 26 we went to Sinai hospital for the MRI. The staff there was great. It broke my heart watching him be sedated. They told us they would be done within the hour, so we went down to the cafeteria for some breakfast and coffee. We didn't eat before the appointment because Logan had to have an empty belly for the anesthesia. We got a call to come back upstairs a bit earlier than I expected. They needed us to sign a form allowing them to administer the contrast dye. So I signed the paper and off we went into the waiting room. We sat there playing Connect Four for what felt like forever. An hour passed, then two hours, then finally they brought us into recovery where he was still fast asleep. Dr. Zuckerberg, the anesthesiologist, came in and told us everything in his brain was fine! I had a giant sigh of relief, I was terrified they might find a mass or something. That moment was short lived when he told us there was a syrinx at the top of his spinal cord. That explains why it took so long. The brain scan took less than an hour, but then they added contrast, as well as scanned his entire cervical spine. Of course I had NO idea what in the world he was talking about, I couldn't even remember what the word was when we left the hospital. Dr. Zuckerberg told me not to look it up because it would sound worse than it is. Naturally I spent hours on google trying out words that looked like sprinx and shynx and siryx all kinds of stuff.
That is when we scheduled the appointment (beginning of May) to see a neurologist at Hopkins. Dr. Baranano was so much better than the previous neurologist we had seen at Hopkins. She was helpful in answering our questions, looked over the MRI films with us, and said that she could only do so much. She is not a radiologist, nor is she a neurosurgeon. So she referred us to neurosurgery at Hopkins since they would be the ones "hands on" with treatment, if need be.
At the end of May we saw Dr. Dankner (again hahaha) and got Logan a pair of glasses. Which he hates. Not to correct any eye crossing issues but to help with his minor nearsightedness. But he does look so damn cute in them!
He had a second MRI done in June to see the lumbar and thoracic spine, and make sure there were no other cysts or other problems. Sedation still broke my heart. That MRI came back completely CLEAR! (And he left with a ton of goodies)
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